Epilepsy Online Resources
Epilespy.com
www.epilepsy.com
An online resource provided by the Epilepsy Therapy Development Project. Our mission is to inform and empower two groups of patients and their families: those facing newly diagnosed epilepsy, and those struggling with epilepsy that has resisted treatment.
Epilepsy Foundation of America
www.epilepsyfoundation.org
The organization works to ensure that people with seizures are able to participate in all life experiences; and to prevent, control and cure epilepsy through research, education, advocacy and services. In addition to programs conducted at the national level, epilepsy clients throughout the United States are served by affiliated Epilepsy Foundation offices in nearly 100 communities.
National Organization for Rare Disorders - Epilepsy Resources
www.rarediseases.org/search/rdbdetail_abstract.html?disname=Epilepsy
No More Seizures
www.nomoreseizures.org
Learn how to become an active participant in your epilepsy treatment.
People Against Childhood Epilepsy (PACE)
www.paceusa.org
PACE was formed in 1996 by the parents of Jake Beck, Morgan Fahey and Sophie Beglinger. All three children were diagnosed with seizure disorders at a very young age. While their histories were each very different, their journeys toward a better life are similar. Their journeys have taken them on roads from traditional to alternative medicine, neurology and epileptology, to naturolpathic and homeopathic remedies, from faith healers and Chinese medicine, to surgery and aromatherapy. While leaving no stone unturned, these very special families found each other along the way and formed PACE. It is their hope that PACE will raise funds to push toward the cure of epilepsy and to provide information and support to families along the way.
The Charlie Foundation
www.charliefoundation.org
The Charlie Foundation was established in 1994 in order to raise awareness about the ketogenic diet as a treatment for childhood epilepsy. The modern success of the diet has led to new demands on the medical community. In order to meet these demands, the Charlie Foundation has expanded its priorities to include educational programs for dietitians and neurologists as well as support for clinicians and researchers working to perfect its administration and discover its mechanisms.
